Links

Internationale Patienten*innenoganisationen

• https://www.idreamforacure.org/
• https://ellysteam.org/
• https://www.toughgenes.org/
• https://www.irf2bpl.es/

Forschung

• https://www.functionalgenomics.pl/
• https://www.marcoglieselab.com/research

Patient*innengruppen

• https://www.facebook.com/groups/727751137572994