Links

International Patient Organisations

• https://www.idreamforacure.org/
• https://ellysteam.org/
• https://www.toughgenes.org/
• https://www.irf2bpl.es/

Research

• https://www.functionalgenomics.pl/
• https://www.marcoglieselab.com/research

Patient Goups

• https://www.facebook.com/groups/727751137572994